Five years ago, I had TT and 125 of RAI. The cancer had moved on to my trachea, but thankfully just a little bit and they were able to pop it off and then RAI appeared to have killed the active Thyroid Tissue. At the time, before RAI they said that my lymph nodes looked active, but the surgeon said that it didn't look like cancer so he didn't take any at the time of TT.
Two Mondays ago, I had my yearly ultrasound and they found a large lymph node. Last Tuesday, I had my biopsy with pathology in the room. Pathology gave me the preliminary findings that they did indeed find Thyroid tissue in the lymph node right near my trachea. But the pathologist was going on vacation straight after so the full report will not be sent to my Endo until Monday. Today that is. My dr. put me in for a 12:30pm appt hoping that the pathology would have sent her the report in the AM so we could discuss, but I just received the call that the report has not been received. My dr's office is calling to see if she can get it.
When I spoke to my dr and told her what pathology told me last Tuesday, my endo told me that I will probably need surgery to have it removed and then she said if it doesn't take the RAI I may have to go to Sloan Kettering.(If you do not know Sloan Kettering - is the top ranked Cancer Treatment and research facility here in NY).
Since I am waiting and dying a little of worry. I am trying not to but easier said than done...right? If there is no RAI uptake- what type of treatment would they give me? If it is in my lymph node...what does this mean? How severe is this?