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#1 lemonbalm

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Posted 19 June 2018 - 02:53 PM

Hello! I am currently on levothyroxine 50mcg for some form of hypothyroidism, it does feel a bit Hashimoto-style, although my antibodies are normal. But what makes me wonder alot is this weird internal vibration, which at the same time is a metallic taste/sensation in my mouth/tongue at the same time vibrating in my whole body, including head, brain, legs etc. It feels like electricity, shaking or buzzing, and it makes my vision vibrate also (if I watch blank wall it is like flashing vibration). This indeed feels very weird and makes me wonder what on earth it is! Can this happen from thyroxine?!

 

Sometime ago I accidentally took a bit extra thyroxine and the metallic taste got worse, so I started to suspect thyroxine. But I might get metallic taste from foods too, and very weird adrenaline surge reactions to certain foods. This sensation also includes a sensation of nervous system being overdrive and hyperactive, and can cause panicky feelings. On top of this I have insomnia from the hyperactivity (which in turn worsens the vibration). I am going to test my thyroid soon, but I think it shows up slightly elevated TSH and normal T4.

 

Anyone with similiar sensations? Thanks for reading!

 



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#2 joplin1975

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Posted 19 June 2018 - 04:19 PM

How long have you been on the levo? What do your labs look like?


  • Lovlkn likes this
Papillary cancer with lymph node involvement
Total Thyroidectomy 8/29/11
TSH 71.17 on 9/14/11
RAI 100mci 9/23/11
Starting point for replacement meds: 50 mcgs of Synthroid, TSH 121.88 on 11/8/11; 100 mcgs of Synthroid, TSH 43.21 on 12/9/11; 137 mcgs of Synthroid, TSH 7.88 on 1/11/12; TSH 8.38 on 2/9/12, 150 mcgs of Synthroid, TSH 2.81 on 3/27/12, TSH 0.54 on 5/8/12, TSH 0.78 on 8/8/12, TSH 0.39 on 12/20/12, TSH 0.24 on 3/5/13, TSH 0.33 on 4/15/14, TSH .12 on 3/10/15, TSH 0.21 on 9/15/2016, TSH .12 on 2/17/17.

#3 Lovlkn

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Posted 19 June 2018 - 11:24 PM

Do you consume any particular food or supplement in large quantities?


Free T-4 and Free T-3 are absolutely necessary to properly dose yourself.
My experience is that 1/2 - 3/4 of range is your goal for optimal treatment

My Journey... 7 years to receive a diagnosis. TT 2004 after 4.5 years on Tapazole that had to be adjusted monthly - endo ran labs every 4 weeks. Remission was never going to happen for me so I opted for surgery to remove. Final DX by surgeon was Hashitoxicosis, TPO antibodies over 2000 and TSI 316% within the year prior to surgery. I never had a ultrasound or any lab testing to rule out cancer - pathology was negative. Post surgery I was kept hypo for many years - until I figured out how to dose my self, relying on where I fell in the FT-4 and FT-3 labs. I run TSH below range due to positive TBII antibodies. Horrible time adjusting to addition of Cytomel = patience pays off when adding this drug to the mix.

The happy ending ---> Stable dose since 1/10 Unithroid 125mcg, Cytomel 12.5mcg - labs I can live with.

None of the information on ThyroidBoards.com is intended to diagnose, treat, cure or prevent any disease. Information shared is based on my personal experiences and should not be considered medical advice. Please consult a physician before adjusting any medication.

#4 lemonbalm

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Posted 20 June 2018 - 03:24 PM

How long have you been on the levo? What do your labs look like?

 

I have been on levo for about three years. I was on Armour thyroid in 2008-2009 for a while, but then was off thyroid meds until 2015 (because it was subclinical or unconfirmed). when T4 was started. Is it possible that 50mcg is too much for me? I feel hot at night, especially feet and feel hyperactive and nervous. Would it be safe to try lowering levo a bit and see what happens? I haven't got any recent labs yet but last time it was like TSH 4.2 and FT4 in the mid-range. Here the municipal system doesn't test FT3 (it was slightly over the range in 2015, I don't think I have conversion issues). 

 

Do you consume any particular food or supplement in large quantities?

 

I used to take heaps of supplements but not anymore - now I take only some B-vits and C. Nowadays get bad reactions from many supplements, like some days ago I took selenium and I went very very hyperactive, brain fog and had terrible anxiety for days. Regarding foods, I have been eating oat and cheese daily but  nothing else comes to my mind. Except that I ate a lot of Alaskan pollack during the last year.  



#5 joplin1975

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Posted 20 June 2018 - 03:43 PM

It's possible. 
 

It's also possible that you've developed TSI, too (another antibody) which can do really weird things to you. 


Papillary cancer with lymph node involvement
Total Thyroidectomy 8/29/11
TSH 71.17 on 9/14/11
RAI 100mci 9/23/11
Starting point for replacement meds: 50 mcgs of Synthroid, TSH 121.88 on 11/8/11; 100 mcgs of Synthroid, TSH 43.21 on 12/9/11; 137 mcgs of Synthroid, TSH 7.88 on 1/11/12; TSH 8.38 on 2/9/12, 150 mcgs of Synthroid, TSH 2.81 on 3/27/12, TSH 0.54 on 5/8/12, TSH 0.78 on 8/8/12, TSH 0.39 on 12/20/12, TSH 0.24 on 3/5/13, TSH 0.33 on 4/15/14, TSH .12 on 3/10/15, TSH 0.21 on 9/15/2016, TSH .12 on 2/17/17.

#6 lemonbalm

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Posted 23 June 2018 - 08:51 AM

It's possible. 
 

It's also possible that you've developed TSI, too (another antibody) which can do really weird things to you. 

 

Okay, thanks! I feel I might be quite sensitive to levo, since I am very sensitive to any stimulants. But decreasing it even a tiny bit will make me feel terrible (even though people say thyroxine has a half-life of a week, I feel the effects within a couple of hours), how long would it take to get used to the lower levo dosage, and how slowly the withdrawal would usually be done? Thanks for your thoughts.   



#7 Lovlkn

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Posted 02 July 2018 - 04:33 PM

What do your last labs look like?


Free T-4 and Free T-3 are absolutely necessary to properly dose yourself.
My experience is that 1/2 - 3/4 of range is your goal for optimal treatment

My Journey... 7 years to receive a diagnosis. TT 2004 after 4.5 years on Tapazole that had to be adjusted monthly - endo ran labs every 4 weeks. Remission was never going to happen for me so I opted for surgery to remove. Final DX by surgeon was Hashitoxicosis, TPO antibodies over 2000 and TSI 316% within the year prior to surgery. I never had a ultrasound or any lab testing to rule out cancer - pathology was negative. Post surgery I was kept hypo for many years - until I figured out how to dose my self, relying on where I fell in the FT-4 and FT-3 labs. I run TSH below range due to positive TBII antibodies. Horrible time adjusting to addition of Cytomel = patience pays off when adding this drug to the mix.

The happy ending ---> Stable dose since 1/10 Unithroid 125mcg, Cytomel 12.5mcg - labs I can live with.

None of the information on ThyroidBoards.com is intended to diagnose, treat, cure or prevent any disease. Information shared is based on my personal experiences and should not be considered medical advice. Please consult a physician before adjusting any medication.




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