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#1 jenny v

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Posted 05 June 2016 - 03:49 PM

We often have posters on this site searching for new doctors who are open to a variety of treatment options to help patients feel their best (it can be a challenge to find one!). We like for posters to share their doc recommendations via private message versus on the site, but there are several sites online to help with your search. I found my integrative doc through the Thyroid Change site and it has a page that lists doctors who are open to the right tests and thyroid medications. I'm sharing a link to it in case anyone else needs help in their search.

 

http://www.thyroidch...or-list-us.html


  • Lovlkn, blackngold, Pamzilla13 and 4 others like this
Thyroid problems since 2002
Diagnosed with Graves Disease 2002 and Hashimoto's Disease April 2012
TT on October 10, 2013
Currently on 90mg Westhroid and 50mcg Cytomel


Information exchanged on these boards should not be construed as medical advice. We ARE NOT doctors. Please seek a qualified physician to answer your questions before acting on any information found here.

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#2 WhatHappened

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Posted 05 June 2016 - 11:00 PM

Nice. A couple not too far from me should the need arise. 


Diagnosis: Hashimotos: 01/22/2016. Hypothyroid: 11/2015
RAIU: 6 hr. 1.5%, 24-hr 3.4% 12/2015: 
FNA: Negative
No cancer detected still.
 
All Ranges: TSH - 0.465-4.680 | FT4 - 0.78-2.19
 
11/15/2015: No Meds: TSH: 72.5 | FT4: <0.07 unmeasurable
11/23/2015: Med change: 25 mcg by PCP
11/24/2015: Med change: 50 mcg PCP Consulted with Endocrinologist
12/14/2015: [email protected] mcg: TSH: 62 | FT4: 0.3 
01/19/2016: [email protected] mcg: TSH: 45 | FT4: 0.4 
01/23/2016: Med change: 100 mcg 
03/02/2016: [email protected] mcg: TSH: 21.6 | FT4: 1.03 
03/03/2016: Med change: 125 mcg
05/06/2016: [email protected] mcg: TSH: 10.3 | FT4: 0.95
05/18/2016: Med change: 137 mcg
08/29/2016: [email protected] mcg: TSH: 6.79 | FT4: 1.24  
12/03/2016: [email protected] mcg: TSH: 5.44 | FT4: 1.35 
12/03/2016: Med change:150 mcg 
03/16/2017: [email protected] mcg: TSH: 2.930 | FT4: ??
... intervening tests mostly the same
07/17/2018: [email protected] mcg: TSH: 2.13 | FT4: 1.39 

 

 

Due disclosure:

While many many women are affected by Hashimotos, a few guys are too!

So, my advice or comments or concerns and experiences come from a male perspective. (I'm a real boy, at least after I got to a decent dose of levo and the hair on legs and arms came back).


#3 Lovlkn

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Posted 08 August 2016 - 09:47 PM

Is it just me?  Or does the link not open?


  • blackngold likes this
Free T-4 and Free T-3 are absolutely necessary to properly dose yourself.
My experience is that 1/2 - 3/4 of range is your goal for optimal treatment

My Journey... 7 years to receive a diagnosis. TT 2004 after 4.5 years on Tapazole that had to be adjusted monthly - endo ran labs every 4 weeks. Remission was never going to happen for me so I opted for surgery to remove. Final DX by surgeon was Hashitoxicosis, TPO antibodies over 2000 and TSI 316% within the year prior to surgery. I never had a ultrasound or any lab testing to rule out cancer - pathology was negative. Post surgery I was kept hypo for many years - until I figured out how to dose my self, relying on where I fell in the FT-4 and FT-3 labs. I run TSH below range due to positive TBII antibodies. Horrible time adjusting to addition of Cytomel = patience pays off when adding this drug to the mix.

The happy ending ---> Stable dose since 1/10 Unithroid 125mcg, Cytomel 12.5mcg - labs I can live with.

None of the information on ThyroidBoards.com is intended to diagnose, treat, cure or prevent any disease. Information shared is based on my personal experiences and should not be considered medical advice. Please consult a physician before adjusting any medication.

#4 jenny v

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Posted 09 August 2016 - 02:28 PM

Hmmm, it looks like Thyroid Change.org has shut down. See if this one works: http://www.thyroid-i...rs/index.htm#us


Thyroid problems since 2002
Diagnosed with Graves Disease 2002 and Hashimoto's Disease April 2012
TT on October 10, 2013
Currently on 90mg Westhroid and 50mcg Cytomel


Information exchanged on these boards should not be construed as medical advice. We ARE NOT doctors. Please seek a qualified physician to answer your questions before acting on any information found here.

#5 WhatHappened

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Posted 10 August 2016 - 01:00 AM

It seems still available through the way back machine (The Internet Archive that takes snapshots of web sites over time).

 

This is from the last update, in March. It loads slowly, so a little patience goes a long way.

 

https://web.archive....or-list-us.html

 

Edit:

 

So I looked at the page source, they actually referenced and stored that table with a third party

 

https://www.jotform..../30890487978070

 

I guess it isn't going to be updated anymore, but I guess it might still be valid for a year or two?

 

 

 

 


Diagnosis: Hashimotos: 01/22/2016. Hypothyroid: 11/2015
RAIU: 6 hr. 1.5%, 24-hr 3.4% 12/2015: 
FNA: Negative
No cancer detected still.
 
All Ranges: TSH - 0.465-4.680 | FT4 - 0.78-2.19
 
11/15/2015: No Meds: TSH: 72.5 | FT4: <0.07 unmeasurable
11/23/2015: Med change: 25 mcg by PCP
11/24/2015: Med change: 50 mcg PCP Consulted with Endocrinologist
12/14/2015: [email protected] mcg: TSH: 62 | FT4: 0.3 
01/19/2016: [email protected] mcg: TSH: 45 | FT4: 0.4 
01/23/2016: Med change: 100 mcg 
03/02/2016: [email protected] mcg: TSH: 21.6 | FT4: 1.03 
03/03/2016: Med change: 125 mcg
05/06/2016: [email protected] mcg: TSH: 10.3 | FT4: 0.95
05/18/2016: Med change: 137 mcg
08/29/2016: [email protected] mcg: TSH: 6.79 | FT4: 1.24  
12/03/2016: [email protected] mcg: TSH: 5.44 | FT4: 1.35 
12/03/2016: Med change:150 mcg 
03/16/2017: [email protected] mcg: TSH: 2.930 | FT4: ??
... intervening tests mostly the same
07/17/2018: [email protected] mcg: TSH: 2.13 | FT4: 1.39 

 

 

Due disclosure:

While many many women are affected by Hashimotos, a few guys are too!

So, my advice or comments or concerns and experiences come from a male perspective. (I'm a real boy, at least after I got to a decent dose of levo and the hair on legs and arms came back).


#6 ssMarilyn

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Posted 22 December 2016 - 10:24 PM

I found my MD/DO here on the thyroid Top Docs list and he is wonderful!! He listens to me, doesn't just treat symptoms, but also looks for the CAUSE!  http://www.thyroid-info.com/topdrs/


Sleep well. There are people out there willing to die tonight so that you can wake up safe tomorrow!


#7 Lovlkn

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Posted 23 December 2016 - 01:24 AM

Several on this list are outdated so everyone please beware.


Free T-4 and Free T-3 are absolutely necessary to properly dose yourself.
My experience is that 1/2 - 3/4 of range is your goal for optimal treatment

My Journey... 7 years to receive a diagnosis. TT 2004 after 4.5 years on Tapazole that had to be adjusted monthly - endo ran labs every 4 weeks. Remission was never going to happen for me so I opted for surgery to remove. Final DX by surgeon was Hashitoxicosis, TPO antibodies over 2000 and TSI 316% within the year prior to surgery. I never had a ultrasound or any lab testing to rule out cancer - pathology was negative. Post surgery I was kept hypo for many years - until I figured out how to dose my self, relying on where I fell in the FT-4 and FT-3 labs. I run TSH below range due to positive TBII antibodies. Horrible time adjusting to addition of Cytomel = patience pays off when adding this drug to the mix.

The happy ending ---> Stable dose since 1/10 Unithroid 125mcg, Cytomel 12.5mcg - labs I can live with.

None of the information on ThyroidBoards.com is intended to diagnose, treat, cure or prevent any disease. Information shared is based on my personal experiences and should not be considered medical advice. Please consult a physician before adjusting any medication.

#8 BettyJean

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Posted 14 March 2017 - 04:32 PM

Sorry. I'm new to the group and just saw this. Do we just send it through the contact page?



#9 joplin1975

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Posted 14 March 2017 - 05:12 PM

Yes, please private message any names directly to the poster in question.

It's super important to get the names of good docs out there, but we are also trying to avoid any kind of liability issues for the forum.

Thanks!
  • Lorzep likes this
Papillary cancer with lymph node involvement
Total Thyroidectomy 8/29/11
TSH 71.17 on 9/14/11
RAI 100mci 9/23/11
Starting point for replacement meds: 50 mcgs of Synthroid, TSH 121.88 on 11/8/11; 100 mcgs of Synthroid, TSH 43.21 on 12/9/11; 137 mcgs of Synthroid, TSH 7.88 on 1/11/12; TSH 8.38 on 2/9/12, 150 mcgs of Synthroid, TSH 2.81 on 3/27/12, TSH 0.54 on 5/8/12, TSH 0.78 on 8/8/12, TSH 0.39 on 12/20/12, TSH 0.24 on 3/5/13, TSH 0.33 on 4/15/14, TSH .12 on 3/10/15, TSH 0.21 on 9/15/2016, TSH .12 on 2/17/17.

#10 ssMarilyn

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Posted 15 November 2018 - 12:41 AM

We often have posters on this site searching for new doctors who are open to a variety of treatment options to help patients feel their best (it can be a challenge to find one!). We like for posters to share their doc recommendations via private message versus on the site, but there are several sites online to help with your search. I found my integrative doc through the Thyroid Change site and it has a page that lists doctors who are open to the right tests and thyroid medications. I'm sharing a link to it in case anyone else needs help in their search.

 

http://www.thyroidch...or-list-us.html

I found my doctor on this list - http://thyroid-info.com/topdrs/


Sleep well. There are people out there willing to die tonight so that you can wake up safe tomorrow!





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