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#21 Andros

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Posted 16 October 2014 - 07:35 PM

Some where around that allowing for differences in each individual.  But you don't go straight on up to 30 mcgs. of T3.  Tiny increments of say 15 mcgs every 8 weeks until things are where you want then to be and you are feeling quite well which by the way will take some time as you have been horribly ill.

 

Even when your FREE T3 is in the upper 75% of the range as provided by your lab for that test, it can take some months for the body to realize it is getting better.  But it will heal; it sure will.  You cannot heal w/o the proper amount of T3/FT3 in your body.  T3 is life sustaining.

 

Hugs,


The above is opinion only, not medical advice. No doctor degrees here. Please seek the advice of a qualified physician........ Andros :D

Graves' Disease, Lupus (Systemic & Discoid), Sjogren's and old age. ;) Armour........3 1/2 grains per day.

Welcome all members! Thank you everyone for participating on this board, for helping other posters and for sharing your experiences and wisdom!

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Posted Today, 10:05 AM



#22 KeepOnGoing

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Posted 16 November 2014 - 10:32 AM

Update:  blood test results 11.11.14

 

TSH: 0.02 (0.3 - 5)

FT4: 24.5 (11 - 24)

FT3: 5.4 (3.9 - 6.8)

 

So the FT3 is going in the right direction since I increased my T3 to 15mcg and decreased my T4 to 150mcg - it's gone up from 5 to 5.4. I inexplicably took my T4 before the test, which I don't normally do, which explains why it is a bit higher than it was last time (23.8).

 

However, ever since I increased my T3 (from 10mcg to 15mcg) I have been having terrible problems getting to sleep. It can be 2, 3 or even (last night!) 4.30am before I get to sleep. Even after lots of exercise, when I'm exhausted, I get to bed and feel strangely awake and unable to relax.

 

There are lots of stresses in my life at the moment and I'm sure they are contributing to this problem. However, I do have to ask if it could be linked with the increased T3? I don't seem to process medicines like everyone else (hence the massive non-conversion issue). This is really getting to me, and is undoing any good work that the extra T3 might be doing. I'm at the point of backing off back to 10mcg to see if it improves. Or will I get used to it? I've been on this dose for a couple of months now.

 

All ideas welcome from a terribly tired Brit!



#23 joplin1975

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Posted 16 November 2014 - 01:17 PM

Well, dang. I hate not being able to sleep.

Taking t4 before blood tests shouldn't change the result, really, since it takes a long, long time for that number to move. I think I would be inclined to decrease the t4 to 137 and stay on the dose of t3. Regardless of how you process medicine, I don't think anyone could sleep well with a free t4 that high. :)
Papillary cancer with lymph node involvement
Total Thyroidectomy 8/29/11
TSH 71.17 on 9/14/11
RAI 100mci 9/23/11
Starting point for replacement meds: 50 mcgs of Synthroid, TSH 121.88 on 11/8/11; 100 mcgs of Synthroid, TSH 43.21 on 12/9/11; 137 mcgs of Synthroid, TSH 7.88 on 1/11/12; TSH 8.38 on 2/9/12, 150 mcgs of Synthroid, TSH 2.81 on 3/27/12, TSH 0.54 on 5/8/12, TSH 0.78 on 8/8/12, TSH 0.39 on 12/20/12, TSH 0.24 on 3/5/13, TSH 0.33 on 4/15/14, TSH .12 on 3/10/15, TSH 0.21 on 9/15/2016, TSH .12 on 2/17/17.

#24 KeepOnGoing

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Posted 16 November 2014 - 01:23 PM

Yes, not being able to sleep is horrible - and it's been going on for a couple of months now, so I constantly feel tired regardless of my thyroid levels.

 

Strangely, my T4 has been much higher than that and I've not had any difficulty sleeping - which is what made me suspect the T3, as it's the only thing that's changed.

 

I guess that the T3 has such a short half life that, if I reduce it, it should become apparent fairly quickly if that was the answer...

 

I've got an appointment with the oncologist on Monday, so I suppose I could ask him. Not keen as he wasn't exactly rushing to put me on T3 to start with and I don't want him to have a reason to say it's not for me and take it away again...



#25 KeepOnGoing

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Posted 17 November 2014 - 08:24 AM

I've read about some people who take their T3 before they go to bed - and reckon this makes them sleep better.

 

This seems totally counter-intuitive to me - but thought it was worth asking if anyone has any experience of this?



#26 KeepOnGoing

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Posted 17 November 2014 - 12:45 PM

Quick update: I saw the oncologist this morning and he is happy for me to continue with 15mcg of T3 and reduce T4 to 137. He doesn't think either would be causing my insomnia, but is willing to try to reduce my T4 further if that is possible.

 

Result!



#27 joplin1975

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Posted 17 November 2014 - 01:37 PM

Nice!!! I hope this helps. If not, there's always wine.  :tongue0013:


Papillary cancer with lymph node involvement
Total Thyroidectomy 8/29/11
TSH 71.17 on 9/14/11
RAI 100mci 9/23/11
Starting point for replacement meds: 50 mcgs of Synthroid, TSH 121.88 on 11/8/11; 100 mcgs of Synthroid, TSH 43.21 on 12/9/11; 137 mcgs of Synthroid, TSH 7.88 on 1/11/12; TSH 8.38 on 2/9/12, 150 mcgs of Synthroid, TSH 2.81 on 3/27/12, TSH 0.54 on 5/8/12, TSH 0.78 on 8/8/12, TSH 0.39 on 12/20/12, TSH 0.24 on 3/5/13, TSH 0.33 on 4/15/14, TSH .12 on 3/10/15, TSH 0.21 on 9/15/2016, TSH .12 on 2/17/17.

#28 KeepOnGoing

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Posted 17 November 2014 - 01:43 PM

I've been teetotal all my life, but I have to admit, at 10 to 5 in the morning, it looks extremely tempting!


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#29 KeepOnGoing

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Posted 11 January 2015 - 11:25 AM

Quick update: now on 135mcg T4 and 20mcg T3 and I've just been for my first 'run' in 2 years!

 

Many, many grateful thanks to Joplin and Andros for helping me out. I feel like I'm beginning to get my life back...

 

You'll note the 'run' went in inverted commas, as there was an awful lot of walking involved, as Devon is pretty hilly and a run which would have taken me half an hour took 45 minutes, but at least it was a start.

 

Just to say to anyone who's struggling right now, stick with it and listen to these lovely people and you will get there. Even if I'm shattered tomorrow, at least there's a good reason for it.

 

Blood tests in a couple of weeks - oncologist was happy for me to try to re-balance the T3 and T4 so long as the TSH stays suppressed. Result!


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#30 joplin1975

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Posted 11 January 2015 - 01:34 PM

Great news! My first run once my meds were straightened out was terribly slow...but no matter how slow you were going, you were still running circles around anyone who was sitting on the couch. :)
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Papillary cancer with lymph node involvement
Total Thyroidectomy 8/29/11
TSH 71.17 on 9/14/11
RAI 100mci 9/23/11
Starting point for replacement meds: 50 mcgs of Synthroid, TSH 121.88 on 11/8/11; 100 mcgs of Synthroid, TSH 43.21 on 12/9/11; 137 mcgs of Synthroid, TSH 7.88 on 1/11/12; TSH 8.38 on 2/9/12, 150 mcgs of Synthroid, TSH 2.81 on 3/27/12, TSH 0.54 on 5/8/12, TSH 0.78 on 8/8/12, TSH 0.39 on 12/20/12, TSH 0.24 on 3/5/13, TSH 0.33 on 4/15/14, TSH .12 on 3/10/15, TSH 0.21 on 9/15/2016, TSH .12 on 2/17/17.

#31 jenny v

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Posted 11 January 2015 - 05:51 PM

Awesome news! Ease yourself into things though, too much exercise too fast can throw off your Free T3 numbers and send you back down to where you were before. It's a balancing game!


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Thyroid problems since 2002
Diagnosed with Graves Disease 2002 and Hashimoto's Disease April 2012
TT on October 10, 2013
Currently on 90mg Westhroid and 50mcg Cytomel


Information exchanged on these boards should not be construed as medical advice. We ARE NOT doctors. Please seek a qualified physician to answer your questions before acting on any information found here.

#32 KeepOnGoing

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Posted 11 January 2015 - 07:35 PM

Yes, that was the reason for my decision to walk up the hills - it had nothing to do with chronic lack of fitness, of course! The current motto is to "live to fight another day" as opposed to ending up completely exhausted. It was just so lovely to feel like giving it a go.

 

Might not be so sure tomorrow...


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#33 KeepOnGoing

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Posted 31 January 2015 - 06:21 PM

Cautionary tale: my tiny bit of exercise seems to have sent my thyroid levels plummeting downwards! Now operating through a fog of tiredness again. When will I learn?



#34 joplin1975

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Posted 31 January 2015 - 06:41 PM

I was caught in that cycle for a little while. Don't go full out, but if you can, keep moving so the doctors can figure out what dose you SHOULD be on. :)
Papillary cancer with lymph node involvement
Total Thyroidectomy 8/29/11
TSH 71.17 on 9/14/11
RAI 100mci 9/23/11
Starting point for replacement meds: 50 mcgs of Synthroid, TSH 121.88 on 11/8/11; 100 mcgs of Synthroid, TSH 43.21 on 12/9/11; 137 mcgs of Synthroid, TSH 7.88 on 1/11/12; TSH 8.38 on 2/9/12, 150 mcgs of Synthroid, TSH 2.81 on 3/27/12, TSH 0.54 on 5/8/12, TSH 0.78 on 8/8/12, TSH 0.39 on 12/20/12, TSH 0.24 on 3/5/13, TSH 0.33 on 4/15/14, TSH .12 on 3/10/15, TSH 0.21 on 9/15/2016, TSH .12 on 2/17/17.

#35 KeepOnGoing

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Posted 31 January 2015 - 06:53 PM

The problem is, I didn't go all out. I did 2 x 30 minutes of run/walk a week, for precisely 3 weeks, and my thyroid hormones seem to have disappeared, leaving me so tired and glum that I can't even walk!

 

Sorry to moan - just feeling like I can't win. Now I feel much worse than I did before - and my T4 level has nearly halved, my T3 is below the bottom of the range (despite taking 15mcg of the stuff every day) and I'm back to square one...

 

Grrrrr!



#36 KeepOnGoing

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Posted 31 January 2015 - 06:55 PM

PS but at least I'm sleeping well - even if it is for 14 hours a day!



#37 joplin1975

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Posted 31 January 2015 - 07:23 PM

I totally and completely understand. My numbers change drastically when I do or don't work out. Just keep feeling it out. When you feel better and get on a larger dose, try walking again. You'll probably have a dip again...increase the meds as needed and try it again. You will find the right spot but it takes forever and a day.
Papillary cancer with lymph node involvement
Total Thyroidectomy 8/29/11
TSH 71.17 on 9/14/11
RAI 100mci 9/23/11
Starting point for replacement meds: 50 mcgs of Synthroid, TSH 121.88 on 11/8/11; 100 mcgs of Synthroid, TSH 43.21 on 12/9/11; 137 mcgs of Synthroid, TSH 7.88 on 1/11/12; TSH 8.38 on 2/9/12, 150 mcgs of Synthroid, TSH 2.81 on 3/27/12, TSH 0.54 on 5/8/12, TSH 0.78 on 8/8/12, TSH 0.39 on 12/20/12, TSH 0.24 on 3/5/13, TSH 0.33 on 4/15/14, TSH .12 on 3/10/15, TSH 0.21 on 9/15/2016, TSH .12 on 2/17/17.

#38 KeepOnGoing

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Posted 31 January 2015 - 07:54 PM

So just a tiny bit of exercise (tiny to me - I used to run half marathons for fun!) could have that much effect on my levels?

 

My GP told me yesterday that it couldn't possibly be that - he appeared to be accusing me of stopping taking the medication, but perhaps that was just me being manic! Why on earth I'd want to send myself hypo, I don't know...

 

Hey ho, time to up the meds and try again. 






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