i am a newbie, this is my first post.
i am not usually part of forums, but i have been researching thyroid issues and thyroid surgery and i have arrived here !
my story really started in january last when my parents were over for a visit. (my parents live in a different country , i don t see them very often). My mother how had her thyroid removed about 15 years ago (aged 58 or so because of a benign nodule) noticed that i had a very big neck and told me "you should really have it checked out". i thought nothing of it, and went on my daily life .
about a month later , i started having issues with sleep, not able to sleep, waking up at night ,with a pressure feeling in my neck, i also woke up one night with pain on the bottom of my neck. especially lying down the pressure was terrible and on one side the pressure seemed to be worse . i also had issues with nightime palpitations and thirst first thing in the morning .So i eventually decided to go to a GP.
the doctor felt my neck and said i had a "goitre", ran some bloods and asked me to have a xray and an ultrasound. i went privately for those as i did not want to wait in the public system.
the xray came back clear but the ultrasound came back with a category U5 nodule ( see more about nodule categories here ( https://radiopaedia....thyroid-nodules) on the left and a couple of category U2 on the other side . i was then referred on to a private endocrinologist.
the endocrinologist said my bloods were normal, although i still have my doubts in that regard ( see results below), but said the nodule on the left was U5 and because of this we needed to have a FNA on it.
the result of the FNA returned "undetermined" .
i was then refered on to an ENT for thyroid surgery, who has scheduled a left lobectomy on july 27th but has pretty much told me if you want to have it all removed left me know , but that he would not make the decision for me or the decision would not be made on the day/table. he did mention my thyroid was swollen on both sides . he seems to have a very good reputation .( but not much of a talker )
in the meantime, another of the Gps in the surgery seemed to think i may also have sleep apnea. given my problem going to sleep and staying asleep and general tiredness i feel/ somnolence during the day ( i do work in front of the computer all day that won t help, and i have 2 toddlers who wake up at night also). My father has sleep apnea , so he thinks i may have it also. so i was reffered to a breathing consultant. i am seeing him on monday for results of sleep studies .
however, i have looked into this and although rare, thyroid can cause sleep apnea i think.. so i wonder , is this all related after all ?
i am quite confused at the moment, i do not should i go ahead with left lobectomy or request it all gone ? i also had an ovary removed a few years ago, and already have balancing issues for hormones, i have night sweats ad hot flushes like i was menopausal, but i shouldn t be yet , i m 38, the bloods say i am not menopausal, is that again due to the thyroid..? would hormones be easier to balance with all the thyroid gone ?
what bugs me the most is that the ent surgeon leaves the choice to me? how do i know what to do ?
if i am honest,. the pressure has eased a bit since i went to the gp originally, but i am concerned about leaving half of it in there ? i wonder if i should do the whole shabang and be done with it!
i have asked the gp for an opinion, she is to ring me back next week.
my bloods are :
13.05.2014 tsh 0.26 fT4 14.0
05.02.2016 tsh 0.63 fT4 11.7
15.04.2016 tsh 0.98 fT4 12.7
28.02.2017 tsh 0.66 fT4 15.43
The range for tsh is 0.27-4.20
The range for free T4 is 12.00 to 22.00
what would you do ?
ps:i have also had issues with low iron post pregnancy in 2014 and post natal depression, although i am not sure if there any relation...