Due to thyroid cancer I chose to have a total thyroidectomy in May 2015. Prior to this I had started on the Paleo diet in December 2014 (after Hashimotos diagnosis). I then went on a LID this month in order to prepare for RAI treatment and noticed that some of my autoimmune symptoms (muscle weakness) decreased. Are you aware of any specific foods that should be avoided after having a thyroidectomy? How much iodine is recommended to consume for someone on Synthroid with no thyroid? Any information/experience is appreciated!
Diet following total thyroidectomy
Started by
gretel0307
, Aug 24 2015 02:15 AM
diet total thyroidectomy
7 replies to this topic
#2
Andros
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Posted 24 August 2015 - 08:43 AM
Welcome to the board. I am so sorry you had to go through all of that but the good news is you came out the other side.
Personally, I am thinking you should not supplement w/exogenous iodine. It could cause problems.
However, I thankfully did not have thyroid cancer. Many here have had it and I know they will be along to offer their experience and advice.
The above is opinion only, not medical advice. No doctor degrees here. Please seek the advice of a qualified physician........ Andros 
Graves' Disease, Lupus (Systemic & Discoid), Sjogren's and old age. 
Armour........3 1/2 grains per day.
Welcome all members! Thank you everyone for participating on this board, for helping other posters and for sharing your experiences and wisdom!
"We Rock" 
#3
Octavia
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Posted 24 August 2015 - 12:14 PM
I am 4 years post-thyroidectomy for cancer, and I pay zero attention to how much iodine I'm consuming. It's never been mentioned to me as something I need to watch (other than when I'm on the LID). I just try to eat healthy-ish.
If you have discovered something that works well for you, it makes sense to me to stick with it, or at least explore it further (which is why you are here, I suppose). Are you concerned about not getting enough iodine if you stick with something like the LID on a long-term basis? I can understand that concern, but unfortunately, I don't have an answer for you.
- Pug lover, saxophone player
- 3.2 cm nodule, inconclusive FNA January 2011
- Partial thyroidectomy February 2011; Papillary cancer; completion thyroidectomy March 2011
- RAI May 2011
- 1-year scan in April 2012 was clear
Information exchanged on these boards should not be construed as medical advice. We ARE NOT doctors. Please seek a qualified physician to answer your questions before acting on any information found here.
- 3.2 cm nodule, inconclusive FNA January 2011
- Partial thyroidectomy February 2011; Papillary cancer; completion thyroidectomy March 2011
- RAI May 2011
- 1-year scan in April 2012 was clear
Information exchanged on these boards should not be construed as medical advice. We ARE NOT doctors. Please seek a qualified physician to answer your questions before acting on any information found here.
#4
joplin1975
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Posted 24 August 2015 - 01:37 PM
I am 4 years post-thyroidectomy for cancer, and I pay zero attention to how much iodine I'm consuming. It's never been mentioned to me as something I need to watch (other than when I'm on the LID). I just try to eat healthy-ish.
If you have discovered something that works well for you, it makes sense to me to stick with it, or at least explore it further (which is why you are here, I suppose). Are you concerned about not getting enough iodine if you stick with something like the LID on a long-term basis? I can understand that concern, but unfortunately, I don't have an answer for you.
Yup, this.
I do count calories and aim for a high protein, high veggie, low carb diet...but I'd be doing that regardless of the thyroid cancer.
Papillary cancer with lymph node involvement
Total Thyroidectomy 8/29/11
TSH 71.17 on 9/14/11
RAI 100mci 9/23/11
Starting point for replacement meds: 50 mcgs of Synthroid, TSH 121.88 on 11/8/11; 100 mcgs of Synthroid, TSH 43.21 on 12/9/11; 137 mcgs of Synthroid, TSH 7.88 on 1/11/12; TSH 8.38 on 2/9/12, 150 mcgs of Synthroid, TSH 2.81 on 3/27/12, TSH 0.54 on 5/8/12, TSH 0.78 on 8/8/12, TSH 0.39 on 12/20/12, TSH 0.24 on 3/5/13, TSH 0.33 on 4/15/14, TSH .12 on 3/10/15, TSH 0.21 on 9/15/2016, TSH .12 on 2/17/17.
Total Thyroidectomy 8/29/11
TSH 71.17 on 9/14/11
RAI 100mci 9/23/11
Starting point for replacement meds: 50 mcgs of Synthroid, TSH 121.88 on 11/8/11; 100 mcgs of Synthroid, TSH 43.21 on 12/9/11; 137 mcgs of Synthroid, TSH 7.88 on 1/11/12; TSH 8.38 on 2/9/12, 150 mcgs of Synthroid, TSH 2.81 on 3/27/12, TSH 0.54 on 5/8/12, TSH 0.78 on 8/8/12, TSH 0.39 on 12/20/12, TSH 0.24 on 3/5/13, TSH 0.33 on 4/15/14, TSH .12 on 3/10/15, TSH 0.21 on 9/15/2016, TSH .12 on 2/17/17.
#5
webster2
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Posted 25 August 2015 - 12:25 AM
I opt for a high protein diet too. lots of fruit & vegetables, low carb. I feel best if I eat good food, not junk.
Thyroid Storm June 2011
Graves Disease DX June 13, 2011
Completion Thyroidectomy July 28, 2011
(right side removed 11/14/1990)
Papillary Cancer
2.25 grains Nature-throid (11/2011-8/2013)
still looking for the correct dose 12/3 (125 mcg 5 x week 112 2x week) 5 mcg cytomel 2 x day
Life is very good! 
#6
Lovlkn
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Posted 25 August 2015 - 02:30 AM
WOW!
We all eat about the same - high protein, low carb and lots of veggies. It just makes me feel better.
Free T-4 and Free T-3 are absolutely necessary to properly dose yourself.
My experience is that 1/2 - 3/4 of range is your goal for optimal treatment
My Journey... 7 years to receive a diagnosis. TT 2004 after 4.5 years on Tapazole that had to be adjusted monthly - endo ran labs every 4 weeks. Remission was never going to happen for me so I opted for surgery to remove. Final DX by surgeon was Hashitoxicosis, TPO antibodies over 2000 and TSI 316% within the year prior to surgery. I never had a ultrasound or any lab testing to rule out cancer - pathology was negative. Post surgery I was kept hypo for many years - until I figured out how to dose my self, relying on where I fell in the FT-4 and FT-3 labs. I run TSH below range due to positive TBII antibodies. Horrible time adjusting to addition of Cytomel = patience pays off when adding this drug to the mix.
The happy ending ---> Stable dose since 1/10 Unithroid 125mcg, Cytomel 12.5mcg - labs I can live with.
None of the information on ThyroidBoards.com is intended to diagnose, treat, cure or prevent any disease. Information shared is based on my personal experiences and should not be considered medical advice. Please consult a physician before adjusting any medication.
My experience is that 1/2 - 3/4 of range is your goal for optimal treatment
My Journey... 7 years to receive a diagnosis. TT 2004 after 4.5 years on Tapazole that had to be adjusted monthly - endo ran labs every 4 weeks. Remission was never going to happen for me so I opted for surgery to remove. Final DX by surgeon was Hashitoxicosis, TPO antibodies over 2000 and TSI 316% within the year prior to surgery. I never had a ultrasound or any lab testing to rule out cancer - pathology was negative. Post surgery I was kept hypo for many years - until I figured out how to dose my self, relying on where I fell in the FT-4 and FT-3 labs. I run TSH below range due to positive TBII antibodies. Horrible time adjusting to addition of Cytomel = patience pays off when adding this drug to the mix.
The happy ending ---> Stable dose since 1/10 Unithroid 125mcg, Cytomel 12.5mcg - labs I can live with.
None of the information on ThyroidBoards.com is intended to diagnose, treat, cure or prevent any disease. Information shared is based on my personal experiences and should not be considered medical advice. Please consult a physician before adjusting any medication.
#7
Octavia
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Posted 25 August 2015 - 01:03 PM
Yeah...the fewer carbs I eat, the better I tend to feel.
- Pug lover, saxophone player
- 3.2 cm nodule, inconclusive FNA January 2011
- Partial thyroidectomy February 2011; Papillary cancer; completion thyroidectomy March 2011
- RAI May 2011
- 1-year scan in April 2012 was clear
Information exchanged on these boards should not be construed as medical advice. We ARE NOT doctors. Please seek a qualified physician to answer your questions before acting on any information found here.
- 3.2 cm nodule, inconclusive FNA January 2011
- Partial thyroidectomy February 2011; Papillary cancer; completion thyroidectomy March 2011
- RAI May 2011
- 1-year scan in April 2012 was clear
Information exchanged on these boards should not be construed as medical advice. We ARE NOT doctors. Please seek a qualified physician to answer your questions before acting on any information found here.
#8
gretel0307
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Posted 27 August 2015 - 03:14 AM
I appreciate all of you taking time to respond and value your input! It is helpful to know my diet is similar to others! Thank you for being part of this community!
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